Publicaties
Alles wat de projecten YARN – European Youth Cancer Network en EU-CAYAS-NET hebben gepubliceerd voor mensen die geraakt zijn door kanker, patiëntenorganisaties, zorgprofessionals en beleidsmakers: lees elk document volledig op deze site, gebruik de interactieve tools, of download de originele pdf en de officiële vertalingen ervan.
YARN – European Youth Cancer Network
YARN Resultaten →
ToolkitInteractieve toolEquity, Diversity and Inclusion Self-Assessment Checklist for Patient Organisations
Ten-question self-assessment checklist by Youth Cancer Europe (YARN project) for patient organisations to review equity, diversity and inclusion practice.
2026 · 32 pagina's · Pdf in 11 talen
Klinische richtlijnGuidelines for Inclusive Events for People Affected by Cancer
Practical guidelines from Youth Cancer Europe's YARN project for organisers planning inclusive, accessible events for people affected by cancer.
2026 · 32 pagina's
EU-CAYAS-NET – EU Network of Youth Cancer Survivors
EU-CAYAS-NET Resultaten →
RapportD6.3Sustainability Strategy, including Evaluation Report
EU-CAYAS-NET deliverable D6.3 (2025) presenting the sustainability strategy for the European Network of Youth Cancer Survivors and a project evaluation.
2025 · 20 pagina's
RapportD6.2Dissemination Report - focusing on highly visible project events
EU-CAYAS-NET deliverable D6.2 (2025) reporting the project's dissemination activities and highly visible events for young cancer survivors in Europe.
2025 · 49 pagina's
BrochureBeyond Survival: Shaping the Future of Cancer Care of Young People
EU-CAYAS-NET outcome brochure (v1.0, July 2025) by CCI-E and Youth Cancer Europe listing the project's publications, videos and tools in eight areas.
2025 · 58 pagina's
AanbevelingenJoint Recommendations for Mental Health and Psychosocial Care in CAYA Cancer Survivorship
EU-CAYAS-NET consensus recommendations on mental health and psychosocial follow-up care for childhood, adolescent and young adult cancer survivors.
2025 · 94 pagina's
ToolkitLet’s Talk About … Mental Health & Psychosocial Care During and Beyond Childhood, Adolescent and Young Adult Cancer
Pocket cards from the EU-CAYAS-NET project on mental health and psychosocial care during and beyond childhood, adolescent and young adult cancer.
2025 · 22 pagina's · Pdf in 14 talen
White paperOptimizing Quality of Life after Youth Cancer
EU-CAYAS-NET white paper by CCI Europe on mental health, education and career, transition and long-term follow-up care for young cancer survivors.
2025 · 36 pagina's
Position paperD3.5Position Paper on Mental Health & Psychosocial Care, Transition and Long-Term Follow-Up Needs during CAYA Cancer Survivorship
EU-CAYAS-NET deliverable D3.5: a position paper for policy makers and healthcare providers on mental health, education, transition and long-term follow-up needs of young cancer survivors in Europe.
2025 · 25 pagina's
RapportCareer Support for Young People Living With and Beyond Cancer
EU-CAYAS-NET report by the Medical University of Vienna and CCI Europe reviewing career support interventions for young cancer survivors.
2024 · 12 pagina's
AanbevelingenD3.4Recommendations for LTFU Care to Be Seen as the Final Step of Successful Cancer Treatment
EU-CAYAS-NET deliverable D3.4 by PanCare and partners: recommendations for organising long-term follow-up care for childhood, adolescent and young adult cancer survivors in Europe.
2024 · 17 pagina's · Pdf in 8 talen
AanbevelingenD3.1Recommendations for Mental Health & Psychosocial Care after CAYA Cancer - Standard, Not Luxury
EU-CAYAS-NET deliverable D3.1: survey findings, pocket-card materials and four policy actions on psychosocial care for young cancer survivors.
2024 · 12 pagina's · Pdf in 9 talen
VerklaringBarcelona Declaration
Declaration signed in Barcelona on 22 October 2024 by EU-CAYAS-NET partners and Spanish organisations: four actions on long-term follow-up care.
2024 · 1 pagina
Klinische richtlijnD3.3Transition Guideline
EU-CAYAS-NET deliverable D3.3: development, scope and 44 recommendations of the guideline on transition of young cancer survivors to adult care.
2024 · 12 pagina's · Pdf in 9 talen
RapportD3.2Train-the-Trainer Concept for HCPs on Education & Career Support for Survivors
EU-CAYAS-NET deliverable D3.2: development, Vienna pilot and final nine-module Train-the-Trainer concept on education and career support for survivors.
2024 · 16 pagina's
ToolkitEquity, Diversity and Inclusion Principles in Cancer Care
EU-CAYAS-NET train-the-trainer toolkit by Youth Cancer Europe and Inclusive Employers: workbook, activities and six training sessions on equity, diversity and inclusion in cancer care.
2024 · 168 pagina's · Pdf in 8 talen
ToolkitTrain-the-Trainer for Education & Career Support
EU-CAYAS-NET Train-the-Trainer manual: nine modules with goals, methods and worksheets on education and career support for young cancer survivors.
2024 · 40 pagina's
VerklaringVienna Declaration
Declaration signed in Vienna on 27 June 2024 by EU-CAYAS-NET partners: four actions to improve mental health and psychosocial care for young survivors.
2024 · 1 pagina
VerklaringVilnius Declaration
Declaration signed in the Lithuanian Parliament on 27 May 2024 by EU-CAYAS-NET partners: four actions on transition to adult cancer care.
2024 · 5 pagina's
AanbevelingenRecommendations for Equitable, Diverse, and Inclusive Cancer Care in Europe
EU-CAYAS-NET policy recommendations by Youth Cancer Europe on equity, diversity and inclusion in cancer care, with actions for EU policymakers, services and patient groups.
2024 · 32 pagina's · Pdf in 9 talen
Position paperMinimum Standards of Specialist Adolescent and Young Adult (AYA) Cancer Care Units
Youth Cancer Europe position paper (EU-CAYAS-NET): a care checklist and eight-point roadmap for adolescent and young adult cancer units in Europe.
2024 · 38 pagina's · Pdf in 10 talen
RapportD6.1Communication and Dissemination Plan
EU-CAYAS-NET deliverable D6.1 (updated August 2023) by CCI Europe and YCE: target audiences, key messages, channels, events, metrics and partner guidance.
2023 · 20 pagina's
RapportD1.1Report on the Ambassador Programme
EU-CAYAS-NET deliverable D1.1 reporting on the Youth Cancer Survivor Ambassador Programme, the February 2023 Brussels workshop, selection and next steps.
2023 · 34 pagina's
RapportD2.2Social Media Metrics
EU-CAYAS-NET deliverable D2.2 reporting beatcancer.eu, Discord, Facebook, Instagram and YouTube metrics for January to May 2023 against project targets.
2023 · 16 pagina's
RapportD2.1Network Platform
EU-CAYAS-NET deliverable D2.1 by POLA on how the beatcancer.eu Network Platform was specified, designed, built and launched in December 2022.
2023 · 14 pagina's
GidsPeer Visit as Research Method in EU-CAYAS-NET
EU-CAYAS-NET methodology for peer visits as a research method: participant criteria, selection, training, host preparation, reporting and risks.
2023 · 14 pagina's
Alle documenten worden medegefinancierd door de Europese Unie in het kader van het EU4Health-programma. De geuite standpunten en meningen zijn uitsluitend die van de auteurs en weerspiegelen niet noodzakelijkerwijs die van de Europese Unie of HaDEA.