Julkaisut
Kaikki YARN – European Youth Cancer Network- ja EU-CAYAS-NET-hankkeiden julkaisut syöpää sairastaville ja syövän vaikutuspiirissä oleville ihmisille, potilasjärjestöille, kliinikoille ja päättäjille: lue kukin asiakirja kokonaisuudessaan tällä sivustolla, käytä interaktiivisia työkaluja tai lataa alkuperäinen PDF ja sen viralliset käännökset.
YARN – European Youth Cancer Network
YARN Tuotokset →
TyökalupakkiInteraktiivinen työkaluEquity, Diversity and Inclusion Self-Assessment Checklist for Patient Organisations
Ten-question self-assessment checklist by Youth Cancer Europe (YARN project) for patient organisations to review equity, diversity and inclusion practice.
2026 · 32 sivua · PDF 11 kielellä
Kliininen ohjeGuidelines for Inclusive Events for People Affected by Cancer
Practical guidelines from Youth Cancer Europe's YARN project for organisers planning inclusive, accessible events for people affected by cancer.
2026 · 32 sivua
EU-CAYAS-NET – EU Network of Youth Cancer Survivors
EU-CAYAS-NET Tulokset →
RaporttiD6.3Sustainability Strategy, including Evaluation Report
EU-CAYAS-NET deliverable D6.3 (2025) presenting the sustainability strategy for the European Network of Youth Cancer Survivors and a project evaluation.
2025 · 20 sivua
RaporttiD6.2Dissemination Report - focusing on highly visible project events
EU-CAYAS-NET deliverable D6.2 (2025) reporting the project's dissemination activities and highly visible events for young cancer survivors in Europe.
2025 · 49 sivua
EsiteBeyond Survival: Shaping the Future of Cancer Care of Young People
EU-CAYAS-NET outcome brochure (v1.0, July 2025) by CCI-E and Youth Cancer Europe listing the project's publications, videos and tools in eight areas.
2025 · 58 sivua
SuosituksetJoint Recommendations for Mental Health and Psychosocial Care in CAYA Cancer Survivorship
EU-CAYAS-NET consensus recommendations on mental health and psychosocial follow-up care for childhood, adolescent and young adult cancer survivors.
2025 · 94 sivua
TyökalupakkiLet’s Talk About … Mental Health & Psychosocial Care During and Beyond Childhood, Adolescent and Young Adult Cancer
Pocket cards from the EU-CAYAS-NET project on mental health and psychosocial care during and beyond childhood, adolescent and young adult cancer.
2025 · 22 sivua · PDF 14 kielellä
Valkoinen kirjaOptimizing Quality of Life after Youth Cancer
EU-CAYAS-NET white paper by CCI Europe on mental health, education and career, transition and long-term follow-up care for young cancer survivors.
2025 · 36 sivua
KannanottoD3.5Position Paper on Mental Health & Psychosocial Care, Transition and Long-Term Follow-Up Needs during CAYA Cancer Survivorship
EU-CAYAS-NET deliverable D3.5: a position paper for policy makers and healthcare providers on mental health, education, transition and long-term follow-up needs of young cancer survivors in Europe.
2025 · 25 sivua
RaporttiCareer Support for Young People Living With and Beyond Cancer
EU-CAYAS-NET report by the Medical University of Vienna and CCI Europe reviewing career support interventions for young cancer survivors.
2024 · 12 sivua
SuosituksetD3.4Recommendations for LTFU Care to Be Seen as the Final Step of Successful Cancer Treatment
EU-CAYAS-NET deliverable D3.4 by PanCare and partners: recommendations for organising long-term follow-up care for childhood, adolescent and young adult cancer survivors in Europe.
2024 · 17 sivua · PDF 8 kielellä
SuosituksetD3.1Recommendations for Mental Health & Psychosocial Care after CAYA Cancer - Standard, Not Luxury
EU-CAYAS-NET deliverable D3.1: survey findings, pocket-card materials and four policy actions on psychosocial care for young cancer survivors.
2024 · 12 sivua · PDF 9 kielellä
JulistusBarcelonan julistus
Barcelonassa 22. lokakuuta 2024 EU-CAYAS-NET-kumppaneiden ja espanjalaisten organisaatioiden allekirjoittama julistus: neljä toimenpidettä pitkäaikaisseurannan hoidossa.
2024 · 1 sivu
Kliininen ohjeD3.3Transition Guideline
EU-CAYAS-NET deliverable D3.3: development, scope and 44 recommendations of the guideline on transition of young cancer survivors to adult care.
2024 · 12 sivua · PDF 9 kielellä
RaporttiD3.2Train-the-Trainer Concept for HCPs on Education & Career Support for Survivors
EU-CAYAS-NET deliverable D3.2: development, Vienna pilot and final nine-module Train-the-Trainer concept on education and career support for survivors.
2024 · 16 sivua
TyökalupakkiEquity, Diversity and Inclusion Principles in Cancer Care
EU-CAYAS-NET train-the-trainer toolkit by Youth Cancer Europe and Inclusive Employers: workbook, activities and six training sessions on equity, diversity and inclusion in cancer care.
2024 · 168 sivua · PDF 8 kielellä
TyökalupakkiTrain-the-Trainer for Education & Career Support
EU-CAYAS-NET Train-the-Trainer manual: nine modules with goals, methods and worksheets on education and career support for young cancer survivors.
2024 · 40 sivua
JulistusVienna Declaration
Declaration signed in Vienna on 27 June 2024 by EU-CAYAS-NET partners: four actions to improve mental health and psychosocial care for young survivors.
2024 · 1 sivu
JulistusVilnius Declaration
Declaration signed in the Lithuanian Parliament on 27 May 2024 by EU-CAYAS-NET partners: four actions on transition to adult cancer care.
2024 · 5 sivua
SuosituksetRecommendations for Equitable, Diverse, and Inclusive Cancer Care in Europe
EU-CAYAS-NET policy recommendations by Youth Cancer Europe on equity, diversity and inclusion in cancer care, with actions for EU policymakers, services and patient groups.
2024 · 32 sivua · PDF 9 kielellä
KannanottoErikoistuneiden nuorten ja nuorten aikuisten (AYA) syövänhoitoyksiköiden vähimmäisstandardit
Youth Cancer Europe -kannanottoasiakirja (EU-CAYAS-NET): hoidon tarkistuslista ja kahdeksankohtainen tiekartta nuorten ja nuorten aikuisten syöpäyksiköille Euroopassa.
2024 · 38 sivua · PDF 10 kielellä
RaporttiD6.1Communication and Dissemination Plan
EU-CAYAS-NET deliverable D6.1 (updated August 2023) by CCI Europe and YCE: target audiences, key messages, channels, events, metrics and partner guidance.
2023 · 20 sivua
RaporttiD1.1Report on the Ambassador Programme
EU-CAYAS-NET deliverable D1.1 reporting on the Youth Cancer Survivor Ambassador Programme, the February 2023 Brussels workshop, selection and next steps.
2023 · 34 sivua
RaporttiD2.2Social Media Metrics
EU-CAYAS-NET deliverable D2.2 reporting beatcancer.eu, Discord, Facebook, Instagram and YouTube metrics for January to May 2023 against project targets.
2023 · 16 sivua
RaporttiD2.1Network Platform
EU-CAYAS-NET deliverable D2.1 by POLA on how the beatcancer.eu Network Platform was specified, designed, built and launched in December 2022.
2023 · 14 sivua
OpasPeer Visit as Research Method in EU-CAYAS-NET
EU-CAYAS-NET methodology for peer visits as a research method: participant criteria, selection, training, host preparation, reporting and risks.
2023 · 14 sivua
Kaikki asiakirjat ovat Euroopan unionin osarahoittamia EU4Health-ohjelman puitteissa. Esitetyt näkemykset ja mielipiteet ovat ainoastaan kirjoittajien omia eivätkä välttämättä vastaa Euroopan unionin tai HaDEA:n näkemyksiä.