Publikacije
Vse, kar sta projekta YARN – European Youth Cancer Network in EU-CAYAS-NET objavila za ljudi, ki jih je prizadel rak, organizacije pacientov, zdravstvene delavce in oblikovalce politik: vsak dokument lahko v celoti preberete na tej strani, uporabite interaktivna orodja ali prenesete izvirni PDF in njegove uradne prevode.
YARN – European Youth Cancer Network
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Priročnik z orodjiInteraktivno orodjeEquity, Diversity and Inclusion Self-Assessment Checklist for Patient Organisations
Ten-question self-assessment checklist by Youth Cancer Europe (YARN project) for patient organisations to review equity, diversity and inclusion practice.
2026 · 32 strani · PDF v 11 jezikih
Klinična smernicaGuidelines for Inclusive Events for People Affected by Cancer
Practical guidelines from Youth Cancer Europe's YARN project for organisers planning inclusive, accessible events for people affected by cancer.
2026 · 32 strani
EU-CAYAS-NET – EU Network of Youth Cancer Survivors
Izidi EU-CAYAS-NET →
PoročiloD6.3Sustainability Strategy, including Evaluation Report
EU-CAYAS-NET deliverable D6.3 (2025) presenting the sustainability strategy for the European Network of Youth Cancer Survivors and a project evaluation.
2025 · 20 strani
PoročiloD6.2Dissemination Report - focusing on highly visible project events
EU-CAYAS-NET deliverable D6.2 (2025) reporting the project's dissemination activities and highly visible events for young cancer survivors in Europe.
2025 · 49 strani
BrošuraBeyond Survival: Shaping the Future of Cancer Care of Young People
EU-CAYAS-NET outcome brochure (v1.0, July 2025) by CCI-E and Youth Cancer Europe listing the project's publications, videos and tools in eight areas.
2025 · 58 strani
PriporočilaJoint Recommendations for Mental Health and Psychosocial Care in CAYA Cancer Survivorship
EU-CAYAS-NET consensus recommendations on mental health and psychosocial follow-up care for childhood, adolescent and young adult cancer survivors.
2025 · 94 strani
Priročnik z orodjiLet’s Talk About … Mental Health & Psychosocial Care During and Beyond Childhood, Adolescent and Young Adult Cancer
Pocket cards from the EU-CAYAS-NET project on mental health and psychosocial care during and beyond childhood, adolescent and young adult cancer.
2025 · 22 strani · PDF v 14 jezikih
Bela knjigaOptimizing Quality of Life after Youth Cancer
EU-CAYAS-NET white paper by CCI Europe on mental health, education and career, transition and long-term follow-up care for young cancer survivors.
2025 · 36 strani
StališčeD3.5Position Paper on Mental Health & Psychosocial Care, Transition and Long-Term Follow-Up Needs during CAYA Cancer Survivorship
EU-CAYAS-NET deliverable D3.5: a position paper for policy makers and healthcare providers on mental health, education, transition and long-term follow-up needs of young cancer survivors in Europe.
2025 · 25 strani
PoročiloKarierna podpora za mlade, ki živijo z rakom in po njem
Poročilo EU-CAYAS-NET Medicinske univerze na Dunaju in CCI Europe, ki pregleduje ukrepe karierne podpore za mlade osebe, ki so preživele raka.
2024 · 12 strani
PriporočilaD3.4Recommendations for LTFU Care to Be Seen as the Final Step of Successful Cancer Treatment
EU-CAYAS-NET deliverable D3.4 by PanCare and partners: recommendations for organising long-term follow-up care for childhood, adolescent and young adult cancer survivors in Europe.
2024 · 17 strani · PDF v 8 jezikih
PriporočilaD3.1Recommendations for Mental Health & Psychosocial Care after CAYA Cancer - Standard, Not Luxury
EU-CAYAS-NET deliverable D3.1: survey findings, pocket-card materials and four policy actions on psychosocial care for young cancer survivors.
2024 · 12 strani · PDF v 9 jezikih
DeklaracijaBarcelonska deklaracija
Deklaracija, podpisana v Barceloni 22. oktobra 2024 s strani partnerjev EU-CAYAS-NET in španskih organizacij: štirje ukrepi za dolgotrajno nadaljnjo oskrbo.
2024 · 1 stran
Klinična smernicaD3.3Transition Guideline
EU-CAYAS-NET deliverable D3.3: development, scope and 44 recommendations of the guideline on transition of young cancer survivors to adult care.
2024 · 12 strani · PDF v 9 jezikih
PoročiloD3.2Train-the-Trainer Concept for HCPs on Education & Career Support for Survivors
EU-CAYAS-NET deliverable D3.2: development, Vienna pilot and final nine-module Train-the-Trainer concept on education and career support for survivors.
2024 · 16 strani
Priročnik z orodjiEquity, Diversity and Inclusion Principles in Cancer Care
EU-CAYAS-NET train-the-trainer toolkit by Youth Cancer Europe and Inclusive Employers: workbook, activities and six training sessions on equity, diversity and inclusion in cancer care.
2024 · 168 strani · PDF v 8 jezikih
Priročnik z orodjiTrain-the-Trainer for Education & Career Support
EU-CAYAS-NET Train-the-Trainer manual: nine modules with goals, methods and worksheets on education and career support for young cancer survivors.
2024 · 40 strani
DeklaracijaVienna Declaration
Declaration signed in Vienna on 27 June 2024 by EU-CAYAS-NET partners: four actions to improve mental health and psychosocial care for young survivors.
2024 · 1 stran
DeklaracijaVilnius Declaration
Declaration signed in the Lithuanian Parliament on 27 May 2024 by EU-CAYAS-NET partners: four actions on transition to adult cancer care.
2024 · 5 strani
PriporočilaRecommendations for Equitable, Diverse, and Inclusive Cancer Care in Europe
EU-CAYAS-NET policy recommendations by Youth Cancer Europe on equity, diversity and inclusion in cancer care, with actions for EU policymakers, services and patient groups.
2024 · 32 strani · PDF v 9 jezikih
StališčeMinimalni standardi specialističnih enot za oskrbo adolescentov in mladih odraslih (AYA) z rakom
Stališčni dokument organizacije Youth Cancer Europe (EU-CAYAS-NET): kontrolni seznam oskrbe in osemtčkovni načrt za enote za oskrbo adolescentov in mladih odraslih z rakom v Evropi.
2024 · 38 strani · PDF v 10 jezikih
PoročiloD6.1Komunikacijski in diseminacijski načrt
Projektni rezultat EU-CAYAS-NET D6.1 (posodobljeno avgusta 2023), ki sta ga pripravila CCI Europe in YCE: ciljne skupine, ključna sporočila, kanali, dogodki, kazalniki in smernice za partnerje.
2023 · 20 strani
PoročiloD1.1Report on the Ambassador Programme
EU-CAYAS-NET deliverable D1.1 reporting on the Youth Cancer Survivor Ambassador Programme, the February 2023 Brussels workshop, selection and next steps.
2023 · 34 strani
PoročiloD2.2Social Media Metrics
EU-CAYAS-NET deliverable D2.2 reporting beatcancer.eu, Discord, Facebook, Instagram and YouTube metrics for January to May 2023 against project targets.
2023 · 16 strani
PoročiloD2.1Network Platform
EU-CAYAS-NET deliverable D2.1 by POLA on how the beatcancer.eu Network Platform was specified, designed, built and launched in December 2022.
2023 · 14 strani
VodnikPeer Visit as Research Method in EU-CAYAS-NET
EU-CAYAS-NET methodology for peer visits as a research method: participant criteria, selection, training, host preparation, reporting and risks.
2023 · 14 strani
Vsi dokumenti so sofinancirani s strani Evropske unije v okviru programa EU4Health. Izražena stališča in mnenja so izključno stališča avtorjev in ne odražajo nujno stališč Evropske unije ali HaDEA.