Publications
Tout ce que les projets YARN – European Youth Cancer Network et EU-CAYAS-NET ont publié pour les personnes touchées par le cancer, les organisations de patients, les cliniciens et les décideurs politiques : lisez chaque document dans son intégralité sur ce site, utilisez les outils interactifs ou téléchargez le PDF original et ses traductions officielles.
YARN – European Youth Cancer Network
Livrables YARN →
Boîte à outilsOutil interactifEquity, Diversity and Inclusion Self-Assessment Checklist for Patient Organisations
Ten-question self-assessment checklist by Youth Cancer Europe (YARN project) for patient organisations to review equity, diversity and inclusion practice.
2026 · 32 pages · PDF en 11 langues
Ligne directrice cliniqueGuidelines for Inclusive Events for People Affected by Cancer
Practical guidelines from Youth Cancer Europe's YARN project for organisers planning inclusive, accessible events for people affected by cancer.
2026 · 32 pages
EU-CAYAS-NET – EU Network of Youth Cancer Survivors
Résultats EU-CAYAS-NET →
RapportD6.3Sustainability Strategy, including Evaluation Report
EU-CAYAS-NET deliverable D6.3 (2025) presenting the sustainability strategy for the European Network of Youth Cancer Survivors and a project evaluation.
2025 · 20 pages
RapportD6.2Dissemination Report - focusing on highly visible project events
EU-CAYAS-NET deliverable D6.2 (2025) reporting the project's dissemination activities and highly visible events for young cancer survivors in Europe.
2025 · 49 pages
BrochureBeyond Survival: Shaping the Future of Cancer Care of Young People
EU-CAYAS-NET outcome brochure (v1.0, July 2025) by CCI-E and Youth Cancer Europe listing the project's publications, videos and tools in eight areas.
2025 · 58 pages
RecommandationsJoint Recommendations for Mental Health and Psychosocial Care in CAYA Cancer Survivorship
EU-CAYAS-NET consensus recommendations on mental health and psychosocial follow-up care for childhood, adolescent and young adult cancer survivors.
2025 · 94 pages
Boîte à outilsLet’s Talk About … Mental Health & Psychosocial Care During and Beyond Childhood, Adolescent and Young Adult Cancer
Pocket cards from the EU-CAYAS-NET project on mental health and psychosocial care during and beyond childhood, adolescent and young adult cancer.
2025 · 22 pages · PDF en 14 langues
Livre blancOptimizing Quality of Life after Youth Cancer
EU-CAYAS-NET white paper by CCI Europe on mental health, education and career, transition and long-term follow-up care for young cancer survivors.
2025 · 36 pages
Prise de positionD3.5Position Paper on Mental Health & Psychosocial Care, Transition and Long-Term Follow-Up Needs during CAYA Cancer Survivorship
EU-CAYAS-NET deliverable D3.5: a position paper for policy makers and healthcare providers on mental health, education, transition and long-term follow-up needs of young cancer survivors in Europe.
2025 · 25 pages
RapportCareer Support for Young People Living With and Beyond Cancer
EU-CAYAS-NET report by the Medical University of Vienna and CCI Europe reviewing career support interventions for young cancer survivors.
2024 · 12 pages
RecommandationsD3.4Recommendations for LTFU Care to Be Seen as the Final Step of Successful Cancer Treatment
EU-CAYAS-NET deliverable D3.4 by PanCare and partners: recommendations for organising long-term follow-up care for childhood, adolescent and young adult cancer survivors in Europe.
2024 · 17 pages · PDF en 8 langues
RecommandationsD3.1Recommendations for Mental Health & Psychosocial Care after CAYA Cancer - Standard, Not Luxury
EU-CAYAS-NET deliverable D3.1: survey findings, pocket-card materials and four policy actions on psychosocial care for young cancer survivors.
2024 · 12 pages · PDF en 9 langues
DéclarationBarcelona Declaration
Declaration signed in Barcelona on 22 October 2024 by EU-CAYAS-NET partners and Spanish organisations: four actions on long-term follow-up care.
2024 · 1 page
Ligne directrice cliniqueD3.3Transition Guideline
EU-CAYAS-NET deliverable D3.3: development, scope and 44 recommendations of the guideline on transition of young cancer survivors to adult care.
2024 · 12 pages · PDF en 9 langues
RapportD3.2Train-the-Trainer Concept for HCPs on Education & Career Support for Survivors
EU-CAYAS-NET deliverable D3.2: development, Vienna pilot and final nine-module Train-the-Trainer concept on education and career support for survivors.
2024 · 16 pages
Boîte à outilsEquity, Diversity and Inclusion Principles in Cancer Care
EU-CAYAS-NET train-the-trainer toolkit by Youth Cancer Europe and Inclusive Employers: workbook, activities and six training sessions on equity, diversity and inclusion in cancer care.
2024 · 168 pages · PDF en 8 langues
Boîte à outilsTrain-the-Trainer for Education & Career Support
EU-CAYAS-NET Train-the-Trainer manual: nine modules with goals, methods and worksheets on education and career support for young cancer survivors.
2024 · 40 pages
DéclarationVienna Declaration
Declaration signed in Vienna on 27 June 2024 by EU-CAYAS-NET partners: four actions to improve mental health and psychosocial care for young survivors.
2024 · 1 page
DéclarationVilnius Declaration
Declaration signed in the Lithuanian Parliament on 27 May 2024 by EU-CAYAS-NET partners: four actions on transition to adult cancer care.
2024 · 5 pages
RecommandationsRecommendations for Equitable, Diverse, and Inclusive Cancer Care in Europe
EU-CAYAS-NET policy recommendations by Youth Cancer Europe on equity, diversity and inclusion in cancer care, with actions for EU policymakers, services and patient groups.
2024 · 32 pages · PDF en 9 langues
Prise de positionMinimum Standards of Specialist Adolescent and Young Adult (AYA) Cancer Care Units
Youth Cancer Europe position paper (EU-CAYAS-NET): a care checklist and eight-point roadmap for adolescent and young adult cancer units in Europe.
2024 · 38 pages · PDF en 10 langues
RapportD6.1Communication and Dissemination Plan
EU-CAYAS-NET deliverable D6.1 (updated August 2023) by CCI Europe and YCE: target audiences, key messages, channels, events, metrics and partner guidance.
2023 · 20 pages
RapportD1.1Report on the Ambassador Programme
EU-CAYAS-NET deliverable D1.1 reporting on the Youth Cancer Survivor Ambassador Programme, the February 2023 Brussels workshop, selection and next steps.
2023 · 34 pages
RapportD2.2Social Media Metrics
EU-CAYAS-NET deliverable D2.2 reporting beatcancer.eu, Discord, Facebook, Instagram and YouTube metrics for January to May 2023 against project targets.
2023 · 16 pages
RapportD2.1Network Platform
EU-CAYAS-NET deliverable D2.1 by POLA on how the beatcancer.eu Network Platform was specified, designed, built and launched in December 2022.
2023 · 14 pages
GuidePeer Visit as Research Method in EU-CAYAS-NET
EU-CAYAS-NET methodology for peer visits as a research method: participant criteria, selection, training, host preparation, reporting and risks.
2023 · 14 pages
Tous les documents sont cofinancés par l’Union européenne dans le cadre du programme EU4Health. Les points de vue et opinions exprimés n’engagent que leurs auteurs et ne reflètent pas nécessairement ceux de l’Union européenne ou de HaDEA.