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14th October, 2009
European Survey on Standards of Care in paediatric oncology centres. J. R. Kowalczyk, M. Samardakiewicz, K. Pritchard-Jones, R. Ladenstein, S. Essiaf, E. Fitzgerald, G. Petrarulo, G. Vassal - EJC , Volume 61, pp 11-19
8th December, 2014
The purpose of this website is to provide good and clear information about the long-term effects of childhood cancer and to refer to the various late-effects outpatient clinics (LATER outpatient clinics) that exist in the Netherlands.
8th September, 2015
Cancer in young people is rare, but it is still a major health issue in Europe. Each year, more than 6,000 young people in Europe die of cancer. There are more than 300,000 European childhood cancer survivors (in 2020, they will be nearly half a million): two-thirds of them have some late side effects of treatment, that are severe and impact on the daily life of half of those affected.
How adult drugs from the group of MAP kinase inhibitors can also be used in children with cancer in a standardized manner worldwide has now been outlined in a statement in the renowned European Journal of Cancer.
The authors of this review are stakeholders from all relevant fields. A major goal of the initiative is to test the most effective and tolerable MAP kinase inhibitor in clinical trials, thus enabling rapid market approval and availability for children.
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3rd August, 2023
The Dutch Childhood Cancer Survivor Study LATER cohort (1963-2001) focuses on long-term health outcomes in childhood cancer survivors. It comprises 5-year survivors diagnosed before age 18 in seven pediatric oncology centers in the Netherlands. Data on diagnosis, treatment, and health outcomes were collected via questionnaires and medical registries. The cohort includes 6165 survivors with extensive data. The study aims to uncover risks and risk factors for adverse health outcomes, aiding risk stratification, surveillance guidelines, and intervention development. The data gathered will serve as a crucial foundation for future follow-up studies, providing valuable insights into the impact of childhood cancer on survivors’ health in the long term.
8th December, 2017
The book ‘Life after childhood cancer’ (published October 2017) contains 24 stories of people who had cancer as a child.
14th April, 2023
A clinical trial represents a form of research carried out by healthcare professionals and scientists with the purpose of evaluating if a new diagnosis or treatment method is safe for patients and can improve their condition.
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