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Addressing the Lifelong Challenges of Childhood Cancer Survivors
Article

Addressing the Lifelong Challenges of Childhood Cancer Survivors

Surviving childhood cancer can be a lifelong challenge: up to 75% of childhood cancer survivors must deal with late effe...

Late Effects of TreamentAll
2020
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IGHG Ototoxicity Guideline
Guidelines

IGHG Ototoxicity Guideline

Recommendations for surveillance for ototoxicity (hearing loss, tinnitus, or both) in survivors who were treated with pl...

Quality of LifeAll
2019
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Don’t Change Yourself for Other People: Adolescents and Young Adults (AYAs) Living with Cancer
Video

Don’t Change Yourself for Other People: Adolescents and Young Adults (AYAs) Living with Cancer

Researchers in the Young Cancer field from the University of Michigan presenting their studies and conclusions

Equality, Diversity and InclusionAll
2022
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Mesothelioma in Young Adults and Children
Article

Mesothelioma in Young Adults and Children

Mesothelioma in Young Adults and Children: causes, incidence and individual stories

SurvivorshipMesothelioma
2023
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Do Young Adults With Cancer Receive Information About Treatment-Related Impact on Sex Life? Results From a Population-Based Study
Publication

Do Young Adults With Cancer Receive Information About Treatment-Related Impact on Sex Life? Results From a Population-Based Study

1010 Young cancer survivors responded the survey: nearly 50% of the women and 30% of the man did not recall receiving in...

Quality of LifeAll
2023
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Outcome Indicators Make Quality of Life After Pediatric Cancer Measurable
Article

Outcome Indicators Make Quality of Life After Pediatric Cancer Measurable

The focus of childhood cancer treatment is to achieve a cure for all patients. With improving survival rates, the emphas...

Late Effects of TreamentAll
2023
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IGHG Survivor Information on Central Nervous System Neoplasms
Brochure

IGHG Survivor Information on Central Nervous System Neoplasms

Brochure on advantage and disadvantage of meningioma screening

Quality of LifeAll
2023
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Good to Know – This Is PPIE!
Publication

Good to Know – This Is PPIE!

Development of a training tool for public and patient involvement and engagement in pediatric oncological research

SurvivorshipAll
2023
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Childhood Cancer Survivors Experience Sensory Changes After Treatments
Publication

Childhood Cancer Survivors Experience Sensory Changes After Treatments

Changes in sense of touch is a long-term side effect of of chilhood cancer survivors

Late Effects of TreamentMixed Type
2022
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Sexual Health Issues for the Young Adult With Cancer: An International Symposium Held During the First Global Adolescents and Young Adults Cancer Congress
Publication

Sexual Health Issues for the Young Adult With Cancer: An International Symposium Held During the First Global Adolescents and Young Adults Cancer Congress

An International Sexual Health Symposium at the Global AYA Cancer Congress to discuss strategies to approach sexual heal...

Quality of LifeAll
2018
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Post-traumatic Growth in Family Members of Childhood Cancer Survivors—an Updated Systematic Review. Journal of Psychosocial Oncology Research and Practice, 2022. 4(4).
Publication

Post-traumatic Growth in Family Members of Childhood Cancer Survivors—an Updated Systematic Review. Journal of Psychosocial Oncology Research and Practice, 2022. 4(4).

The authors systematically reviewed recent evidence of post-traumatic growth (PTG) among family members of childhood can...

Quality of LifeAll
2022
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Transition and Transfer in Rare Chronic Diseases. Implementation of Established Concepts From Theory to Practice
Publication

Transition and Transfer in Rare Chronic Diseases. Implementation of Established Concepts From Theory to Practice

The article provides a new suggested care pathway within the transition from paediatric to adult medicine.

Quality of LifeAll
2023
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