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Balancing the Benefits and Harms of Thyroid Cancer Surveillance in Survivors of Childhood, Adolescent and Young Adult Cancer: Recommendations From the International Late Effects of Childhood Cancer Guideline Harmonization Group
Article

Balancing the Benefits and Harms of Thyroid Cancer Surveillance in Survivors of Childhood, Adolescent and Young Adult Cancer: Recommendations From the International Late Effects of Childhood Cancer Guideline Harmonization Group

Surveillance recommendations for differentiated thyroid cancer (DTC) after Radiation exposure to the thyroid gland .

Quality of LifeAll
2018
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The PanCareSurFup Consortium: Research and Guidelines to Improve Lives for Survivors of Childhood Cancer.
Article

The PanCareSurFup Consortium: Research and Guidelines to Improve Lives for Survivors of Childhood Cancer.

Evaljuation of subsequent primary malignancies, cardiac disease and late mortality in survivors and guideline developmen...

Quality of LifeAll
2018
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Recommendations for Gonadotoxicity Surveillance in Male Childhood, Adolescent, and Young Adult Cancer Survivors: A Report From the International Late Effects of Childhood Cancer Guideline Harmonization Group
Article

Recommendations for Gonadotoxicity Surveillance in Male Childhood, Adolescent, and Young Adult Cancer Survivors: A Report From the International Late Effects of Childhood Cancer Guideline Harmonization Group

Article with recommendations on gonadotoxicity surveillance in male CCS.

Quality of LifeAll
2017
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The PanCareSurFup Cohort of 83,333 Five-Year Survivors of Childhood Cancer: A Cohort From 12 European Countries
Article

The PanCareSurFup Cohort of 83,333 Five-Year Survivors of Childhood Cancer: A Cohort From 12 European Countries

Article on the aim and importance of the PanCareSurFup project

Quality of LifeAll
2018
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Risk of Digestive Cancers in a Cohort of 69 460 Five-Year Survivors of Childhood Cancer in Europe: The PanCareSurFup Study
Article

Risk of Digestive Cancers in a Cohort of 69 460 Five-Year Survivors of Childhood Cancer in Europe: The PanCareSurFup Study

This article describes the risk of seccondary digestive cancers

Quality of LifeAll
2020
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Advice to Clinicians on Communication From Adolescents and Young Adults With Cancer and Parents of Children With Cancer
Publication

Advice to Clinicians on Communication From Adolescents and Young Adults With Cancer and Parents of Children With Cancer

Adolescent and Young Adult (AYA) cancer patients and childhood cancer parents preferences and needs in the communication...

Mental HealthAll
2022
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How to Involve Patients in Research: An Example of Patient and Public Involvement and Engagement (PPIE) With an AYA Cancer Survivor
Podcast

How to Involve Patients in Research: An Example of Patient and Public Involvement and Engagement (PPIE) With an AYA Cancer Survivor

Youth Cancer Survivor Oriana Sousa participated in an EU Patients' Voice Podcast to explain the role of the Patient Advi...

SurvivorshipAll
2023
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Navigating Cancer and Fentanyl Dependence: Resources for Coping and Harm Reduction
Article

Navigating Cancer and Fentanyl Dependence: Resources for Coping and Harm Reduction

One of the results of cancer and treatment can be severe pain that can affect a person’s emotional well-being. Fentanyl...

Mental HealthAll
2023
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Quality of Life of Adolescent and Adult Survivors of Childhood Cancer in Europe - A Systematic Review
Article

Quality of Life of Adolescent and Adult Survivors of Childhood Cancer in Europe - A Systematic Review

This study critically evaluates and summarises the latest evidence on the QoL of childhood cancer survivors in Europe an...

Quality of LifeAll
2023
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Improving Quality and Quantity of Life for Childhood Cancer Survivors Globally in the Twenty-First Century
Article

Improving Quality and Quantity of Life for Childhood Cancer Survivors Globally in the Twenty-First Century

This review article highlights the global progress made and future efforts that will be needed to further increase the q...

Quality of LifeAll
2023
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Parent-Reported Health-Related Quality of Life in Pediatric Childhood Cancer Survivors and Factors Associated With Poor Health-Related Quality of Life in Aftercare
Article

Parent-Reported Health-Related Quality of Life in Pediatric Childhood Cancer Survivors and Factors Associated With Poor Health-Related Quality of Life in Aftercare

The study examined how parents assess the health-related quality of life (HRQoL) of child cancer survivors approximately...

Quality of LifeAll
2023
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Barriers to Receiving Follow-up Care Among Childhood Cancer Survivors
Article

Barriers to Receiving Follow-up Care Among Childhood Cancer Survivors

This article identifies barriers that survivors of childhood cancer can face when it comes to long-term follow-up care.

Long-term Follow-up CareAll
2023
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