Article
Mesothelioma in Young Adults and Children
Mesothelioma in Young Adults and Children: causes, incidence and individual stories
SurvivorshipMesotheliomaEU-CAYAS-NET
2023
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Cancer Related Resources
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Publication
Everything’s a Fight: A Qualitative Study of the Cancer Survivorship Experiences of Transgender and Gender Diverse Australians
The experiences of survivorship and follow-up cancer care of Australians who identify as transgender and gender diverse...
SurvivorshipAllEU-CAYAS-NET
2023
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Publication
Good to Know – This Is PPIE!
Development of a training tool for public and patient involvement and engagement in pediatric oncological research
SurvivorshipAllEU-CAYAS-NET
2023
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Publication
Sexual Health Issues for the Young Adult With Cancer: An International Symposium Held During the First Global Adolescents and Young Adults Cancer Congress
An International Sexual Health Symposium at the Global AYA Cancer Congress to discuss strategies to approach sexual heal...
Quality of LifeAllEU-CAYAS-NET
2018
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Publication
Perceived barriers and facilitators to health behaviors in European childhood cancer survivors: A qualitative PanCareFollowUp study
A wide range of barriers and facilitators were identified which were most often related to the domains “Knowledge,” “Bel...
Quality of LifeAllEU-CAYAS-NET
2023
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Publication
Financial Burden for Caregivers of Adolescents and Young Adults With Cancer
Supporting young adult cancer survivors can be financially and emotionally challenging for caregivers.
Financial DiscriminationMixed TypeEU-CAYAS-NET
2022
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Publication
Screening for Psychological Late Effects in Childhood, Adolescent and Young Adult Cancer Survivors: A Systematic Review
In the past years, many new studies indicated that many childhood cancer survivors suffer from psychological distress lo...
Long-term Follow-up CareAllEU-CAYAS-NET
2015
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Publication
Questionnaire And Linkage-Based Outcomes in Dutch Childhood Cancer Survivors: Methodology of the Dccss Later Study Part 1
The Dutch Childhood Cancer Survivor Study LATER cohort (1963-2001) focuses on long-term health outcomes in childhood can...
Late Effects of TreamentAllEU-CAYAS-NET
2023
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Publication
Information Needs in Parents of Long-Term Childhood Cancer Survivors
Parents' knowledge about cancer, treatment, potential late effects, and necessary follow-up is important to reassure the...
Psychosocial CareAllEU-CAYAS-NET
2015
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Publication
“I Wish Someone Had Once Asked Me How I’m Doing”: Disadvantages and Support Needs Faced by Parents of Long-Term Childhood Cancer Survivors
This publication focuses on the parents’ perspective of childhood cancer survivors (CCS) and how cancer affects the whol...
Psychosocial CareAllEU-CAYAS-NET
2019
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Publication
“I Don’t Take for Granted That I Am Doing Well Today”: A Mixed Methods Study on Well-Being, Impact of Cancer, and Supportive Needs in Long-Term Childhood Cancer Survivors
Nowadays, most children can be cured from cancer and become survivors. This means that more survivors experience physica...
Psychosocial CareAllEU-CAYAS-NET
2021
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Article
Health-Related Quality of Life Issues in Adolescents and Young Adults with Cancer: Discrepancies with the Perceptions of Health Care Professionals
A study that highlights the importance of direct involvement of young affected patients in the planning and improvement...
Quality of LifeAllEU-CAYAS-NET
2021
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