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Cancer Related Resources

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Empowering Young Warriors: The EJP RD Paediatric Expert Patients Training for Rare Disease Research and Advocacy
Related Projects

Empowering Young Warriors: The EJP RD Paediatric Expert Patients Training for Rare Disease Research and Advocacy

European Joint Programme on Rare Diseases - creating a rare diseases research ecosystem for progress, innovation and for...

PolicyAllEU-CAYAS-NET
2019
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PARADIGM - Patients Active in Research and Dialogues for an Improved Generation of Medicines
Related Projects

PARADIGM - Patients Active in Research and Dialogues for an Improved Generation of Medicines

PARADIGM - providing a unique framework that enables structured, effective, meaningful, ethical, innovative, and sustain...

PolicyAllEU-CAYAS-NET
2018
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Short And Long-Term Impact of Cancer on Employment and Financial Outcomes of Adolescents and Young Adults (AYAS): A Large Population-Based Case-Control Registry Study in the Netherlands
Publication

Short And Long-Term Impact of Cancer on Employment and Financial Outcomes of Adolescents and Young Adults (AYAS): A Large Population-Based Case-Control Registry Study in the Netherlands

Comparison of occupational and financial outcomes between survivors of cancer and people without cancer in the Netherlan...

EducationAllEU-CAYAS-NET
2022
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Preferences for Exercise and Physical Activity Support in Adolescent and Young Adult Cancer Survivors: A Cross Sectional Survey
Publication

Preferences for Exercise and Physical Activity Support in Adolescent and Young Adult Cancer Survivors: A Cross Sectional Survey

On the individual preferences for physical activity among cancer survivors.

Physical activityAllEU-CAYAS-NET
2021
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Voices of Resilience: Sharing Stories of Childhood Cancer Survival and Support
Video

Voices of Resilience: Sharing Stories of Childhood Cancer Survival and Support

A true conversation between a survivir and an affected mother

Cross-border HealthcareAllEU-CAYAS-NET
2023
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Social Media and the Adolescent and Young Adult (AYA) Patient with Cancer
Article

Social Media and the Adolescent and Young Adult (AYA) Patient with Cancer

The use of social media by young people with cancer and a helpful overview of some online platforms.

Quality of LifeAllEU-CAYAS-NET
2016
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Parent-Reported Health-Related Quality of Life in Pediatric Childhood Cancer Survivors and Factors Associated With Poor Health-Related Quality of Life in Aftercare
Article

Parent-Reported Health-Related Quality of Life in Pediatric Childhood Cancer Survivors and Factors Associated With Poor Health-Related Quality of Life in Aftercare

The study examined how parents assess the health-related quality of life (HRQoL) of child cancer survivors approximately...

Quality of LifeAllEU-CAYAS-NET
2023
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Improving Quality and Quantity of Life for Childhood Cancer Survivors Globally in the Twenty-First Century
Article

Improving Quality and Quantity of Life for Childhood Cancer Survivors Globally in the Twenty-First Century

This review article highlights the global progress made and future efforts that will be needed to further increase the q...

Quality of LifeAllEU-CAYAS-NET
2023
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Transatlantic Progress in Measurement of Cognitive Outcomes in Paediatric Oncology Trials
Publication

Transatlantic Progress in Measurement of Cognitive Outcomes in Paediatric Oncology Trials

On the importance of neuropsychological aspects of quality of life in survivors in paediatric oncology trials.

Quality of LifeBrain and Nervous SystemEU-CAYAS-NET
2023
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Addressing Late Effects in Childhood Cancer Survivors: Improving Quality of Life and Long-Term Health in Germany
Article

Addressing Late Effects in Childhood Cancer Survivors: Improving Quality of Life and Long-Term Health in Germany

Today, the majority of oncology patients recover from their initial disease. However, many are affected by late effects.

Long-term Follow-up CareAllEU-CAYAS-NET
2020
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Barriers to Receiving Follow-up Care Among Childhood Cancer Survivors
Article

Barriers to Receiving Follow-up Care Among Childhood Cancer Survivors

This article identifies barriers that survivors of childhood cancer can face when it comes to long-term follow-up care.

Long-term Follow-up CareAllEU-CAYAS-NET
2023
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Endocrine Late Effects in Childhood Cancer Survivors
Article

Endocrine Late Effects in Childhood Cancer Survivors

Recent advances in cancer treatment have led to improved survival, with an exponential increase in sequelae among surviv...

Late Effects of TreamentAllEU-CAYAS-NET
2022
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