
Empowering Young Warriors: The EJP RD Paediatric Expert Patients Training for Rare Disease Research and Advocacy
European Joint Programme on Rare Diseases - creating a rare diseases research ecosystem for progress, innovation and for...
Comprehensive guides, articles, and tools to support your cancer journey. Find trusted information for patients, survivors, and caregivers.
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European Joint Programme on Rare Diseases - creating a rare diseases research ecosystem for progress, innovation and for...

PARADIGM - providing a unique framework that enables structured, effective, meaningful, ethical, innovative, and sustain...

Comparison of occupational and financial outcomes between survivors of cancer and people without cancer in the Netherlan...

On the individual preferences for physical activity among cancer survivors.

A true conversation between a survivir and an affected mother

The use of social media by young people with cancer and a helpful overview of some online platforms.

The study examined how parents assess the health-related quality of life (HRQoL) of child cancer survivors approximately...

This review article highlights the global progress made and future efforts that will be needed to further increase the q...

On the importance of neuropsychological aspects of quality of life in survivors in paediatric oncology trials.

Today, the majority of oncology patients recover from their initial disease. However, many are affected by late effects.

This article identifies barriers that survivors of childhood cancer can face when it comes to long-term follow-up care.

Recent advances in cancer treatment have led to improved survival, with an exponential increase in sequelae among surviv...