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14th October, 2009
European Survey on Standards of Care in paediatric oncology centres. J. R. Kowalczyk, M. Samardakiewicz, K. Pritchard-Jones, R. Ladenstein, S. Essiaf, E. Fitzgerald, G. Petrarulo, G. Vassal - EJC , Volume 61, pp 11-19
8th December, 2014
The purpose of this website is to provide good and clear information about the long-term effects of childhood cancer and to refer to the various late-effects outpatient clinics (LATER outpatient clinics) that exist in the Netherlands.
8th September, 2015
Cancer in young people is rare, but it is still a major health issue in Europe. Each year, more than 6,000 young people in Europe die of cancer. There are more than 300,000 European childhood cancer survivors (in 2020, they will be nearly half a million): two-thirds of them have some late side effects of treatment, that are severe and impact on the daily life of half of those affected.
The EU General Data Protection Regulation (GDPR) 1 was implemented on May 25, 2018, stipulating rules on the protection of individuals regarding the processing and free movement of personal data. 3 years later, the European Society for Paediatric Oncology (SIOP Europe) conducted a survey among clinicians and academics from across Europe to investigate the impact of the GDPR on childhood cancer research and to identify the challenges and opportunities in this field.
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14th April, 2023
A report from the International Late Effects of Childhood Cancer Guideline Harmonization Group
8th April, 2022
PanCareSurPass is an EU-funded project looking at how to widely implement the digital Survivorship Passport (SurPass) to improve survivorship care for survivors of childhood and adolescent cancer in Europe.
14th April, 2023
The Adolescent and Young Adults (AYA) Patient Bill of Rights was developed by the Stupid Cancer organisation which is based in the United States.