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Social Media and the Adolescent and Young Adult (AYA) Patient with Cancer
Article

Social Media and the Adolescent and Young Adult (AYA) Patient with Cancer

The use of social media by young people with cancer and a helpful overview of some online platforms.

UpdatedQuality of LifeAll
2016
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Preferences for Exercise and Physical Activity Support in Adolescent and Young Adult Cancer Survivors: A Cross Sectional Survey
Publication

Preferences for Exercise and Physical Activity Support in Adolescent and Young Adult Cancer Survivors: A Cross Sectional Survey

On the individual preferences for physical activity among cancer survivors.

UpdatedPhysical activityAll
2021
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OACCUs: Empowering Young Cancer Survivors for a Healthier and Sustainable Future in Europe
Related Projects

OACCUs: Empowering Young Cancer Survivors for a Healthier and Sustainable Future in Europe

OAC Connect Us focuses on increasing survivors' quality of life through a healthy lifestyle

UpdatedQuality of LifeAll
2022
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Empowering Young Warriors: The EJP RD Paediatric Expert Patients Training for Rare Disease Research and Advocacy
Related Projects

Empowering Young Warriors: The EJP RD Paediatric Expert Patients Training for Rare Disease Research and Advocacy

European Joint Programme on Rare Diseases - creating a rare diseases research ecosystem for progress, innovation and for...

UpdatedPolicyAll
2019
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PARADIGM - Patients Active in Research and Dialogues for an Improved Generation of Medicines
Related Projects

PARADIGM - Patients Active in Research and Dialogues for an Improved Generation of Medicines

PARADIGM - providing a unique framework that enables structured, effective, meaningful, ethical, innovative, and sustain...

UpdatedPolicyAll
2018
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Share4Rare - Improving Quality of Life for Those Affected by a Rare Disease
Related Projects

Share4Rare - Improving Quality of Life for Those Affected by a Rare Disease

Share4Rare - Social media platform dedicated to rare diseases, using collective intelligence for the generation of aware...

UpdatedQuality of LifeAll
2018
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ERN PaedCan - European Reference Network for Pediagtric Oncology
Related Projects

ERN PaedCan - European Reference Network for Pediagtric Oncology

ERN PaedCan - facilitating existing European healthcare structures to provide highly specialised, accessible and cost-ef...

UpdatedCross-border HealthcareAll
2017
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PanCareLIFE - Impact of Treatment on the Long-Term Health of Childhood Cancer Survivors
Related Projects

PanCareLIFE - Impact of Treatment on the Long-Term Health of Childhood Cancer Survivors

PanCareLIFE - evaluating the risks of impairments in female fertility, hearing and quality of life after childhood cance...

UpdatedLate Effects of TreamentAll
2013
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Levelling Up AYA Cancer Care: Insights from Innovative Peer Visits Across Europe
Report

Levelling Up AYA Cancer Care: Insights from Innovative Peer Visits Across Europe

AYA Cancer Care Across Europe: Peer Visits Transforming Advocacy. Young survivors share firsthand insights from hospital...

UpdatedLong-term Follow-up CareAll
2023
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