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Europa Donna’s White Paper on Cancer and Family Planning
Publication

Europa Donna’s White Paper on Cancer and Family Planning

Europa Donna’s White Paper on Cancer and Family Planning was developed after an policy event held at the European Parlia...

FertilityAllEU-CAYAS-NET
2023
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YCE’s Patient Advocate Nicola Unterecker Speaks at the 2023 World Mental Health Day Conference
Video

YCE’s Patient Advocate Nicola Unterecker Speaks at the 2023 World Mental Health Day Conference

Youth Cancer Europe's patient advocate, Nicola Unterecker spoke at the European Commission World Mental Health Day Confe...

Mental HealthAllEU-CAYAS-NET
2023
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Use of Telepresence Systems to Enhance School Participation in Pediatric Patients With Chronic Illnesses Involving the CNS
Publication

Use of Telepresence Systems to Enhance School Participation in Pediatric Patients With Chronic Illnesses Involving the CNS

In this paper Clarissa Zillner and colleagues discuss different telepresence systems as a way to enable participation fo...

EducationBrain and Nervous SystemEU-CAYAS-NET
2022
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The “Right to Be Forgotten” Creating Ripples Across Europe
Video

The “Right to Be Forgotten” Creating Ripples Across Europe

As of 2024, eight Member States have taken legal measures to counter financial discrimination against cancer survivors.

Financial DiscriminationAllEU-CAYAS-NET
2018
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Bridging the Gap – Researching Together
Article

Bridging the Gap – Researching Together

The Medical University Vienna and CCI-E developed a practical guide for all researchers who want to involve patients in...

Mental HealthAllEU-CAYAS-NET
2023
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YCE in a Policy Dialogue on Mental Health With EU Health Commissioner
Article

YCE in a Policy Dialogue on Mental Health With EU Health Commissioner

YCE patient advocates Nicola Unterecker and Mariana Coutinho took part in the European Commission's youth policy dialogu...

Mental HealthAllEU-CAYAS-NET
2023
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Long-Term Second Primary Cancer Risk in Adolescent and Young Adult (15-39 Years) Cancer Survivors: A Population-Based Study in the Netherlands Between 1989 and 2018
Article

Long-Term Second Primary Cancer Risk in Adolescent and Young Adult (15-39 Years) Cancer Survivors: A Population-Based Study in the Netherlands Between 1989 and 2018

Few studies have comprehensively investigated the long-term second cancer risk among adolescent and young adult (AYA, ag...

Late Effects of TreamentAll
2023
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We Are Done! Now What? Exploring End of Treatment Needs of Childhood Cancer Survivors and Their Parents
Article

We Are Done! Now What? Exploring End of Treatment Needs of Childhood Cancer Survivors and Their Parents

This study employed a mixed methods design. End of Treatment Questionnaires were completed by survivors of childhood can...

Late Effects of TreamentAllEU-CAYAS-NET
2024
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Fertility Inequalities in European Cancer Care: Insights from Youth Cancer Europe
Article

Fertility Inequalities in European Cancer Care: Insights from Youth Cancer Europe

Youth Cancer Europe’s survey unveils fertility inequalities in European cancer care, urging the integration of accessibl...

FertilityAllEU-CAYAS-NET
2022
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Loving People as They Are: A Conversation With Vanesa Karaivanova
Interview

Loving People as They Are: A Conversation With Vanesa Karaivanova

Diagnosed with leukemia at a young age, Vanesa Karaivanova's story is one of resilience and enduring spirit. Now 24, she...

SurvivorshipLeukemiaEU-CAYAS-NET
2024
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Upscaling AYA Cancer Care: Towards Establishing Minimum Standards of Care for Adolescents and Young Adults (AYA) Across Europe
Report

Upscaling AYA Cancer Care: Towards Establishing Minimum Standards of Care for Adolescents and Young Adults (AYA) Across Europe

Decisive virtual roundtable on AYA cancer care, uniting experts and advocates to establish standards across Europe.

Quality of LifeAllEU-CAYAS-NET
2024
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Living Life to the Fullest: A conversation with Nicola Unterecker
Interview

Living Life to the Fullest: A conversation with Nicola Unterecker

Get to know Nicola Unterecker, a 29-year-old from southern Germany. Despite facing a challenging diagnosis of a crossed...

SurvivorshipLymphomaEU-CAYAS-NET
2024
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