Research Together in Junior Research Academy

The involvement of patients and the public in research & development is important to meet the needs and interests of all parties. Research without patients is missing something and those directly affected bring the value of lived experience with treatment methods and their side effects. For example, in order to develop effective diagnostic methods and therapies, we not only need to take measurements, analytics and treatment into consideration, but also the experience that patients bring with them. It is therefore an encouraging improvement that the involvement of patients in clinical research is gaining in importance. In “Patient and Public Involvement & Engagement”, short PPIE, patients are directly and actively involved in research processes from the very beginning: From phrasing the research question, to applying for funding, to the collecting and analyzing of the data gathered. The projects that emerge from this expanded multidisciplinary approach benefit from better research quality and are also more effective because they take the needs and valuable experiences of patients into account.

PPIE is also playing a growing role in paediatric oncology and haematology. In addition to participating in clinical studies, we therefore want to meet children, adolescents and young adults at eye level and encourage them to actively participate in interdisciplinary research processes from different disciplines. In this Lab Book, you will more information about how patients can participate in research and how good cooperation looks like. The Lab Book is a practical guide that you can use in your research workshop. It is divided as follows:

1. What is Patient and Public Involvement and Engagement?
2. How do we want to work together?
3. PPIE Dictionary
4. My Team and research group
5. Intervention worksheet
6. How does research actually work?
7. The study design guide
8. How to continue
9. Space for notes

The Lab Book guides you through the entire workshop and helps you to actively participate.

So, get your Lab Book and be part of groundbreaking research!