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14th October, 2009
European Survey on Standards of Care in paediatric oncology centres. J. R. Kowalczyk, M. Samardakiewicz, K. Pritchard-Jones, R. Ladenstein, S. Essiaf, E. Fitzgerald, G. Petrarulo, G. Vassal - EJC , Volume 61, pp 11-19
8th December, 2014
The purpose of this website is to provide good and clear information about the long-term effects of childhood cancer and to refer to the various late-effects outpatient clinics (LATER outpatient clinics) that exist in the Netherlands.
8th September, 2015
Cancer in young people is rare, but it is still a major health issue in Europe. Each year, more than 6,000 young people in Europe die of cancer. There are more than 300,000 European childhood cancer survivors (in 2020, they will be nearly half a million): two-thirds of them have some late side effects of treatment, that are severe and impact on the daily life of half of those affected.
Childhood, adolescent and young adult cancer survivors treated with anthracycline chemotherapy and/or radiation to fields that include the heart have an increased risk of cardiomyopathy.
Because of this high risk survivors may benefit from surveillance.
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14th April, 2023
IQ tests are on everyone’s lips. The study addresses the risk of misinterpretation and proposes concepts that are closer to the needs of the examined.
6th December, 2023
Explore the EU-CAYAS-NET project, a pioneering EU-funded initiative advancing the quality of life for youth cancer survivors. Led by patient advocates, the project focuses on mental health, education, career support, and equitable care transitions. Dive into project materials, including leaflets, posters, and public deliverables, to learn about the Network Platform and efforts in Equality, Diversity, and Inclusion. Connect with the project team to discover how they’re shaping a Knowledge Centre and interactive Platform for social networking, driving positive change for adolescents and young adults with cancer.
3rd August, 2023
In the past years, many new studies indicated that many childhood cancer survivors suffer from psychological distress long after treatment ended. However, there is a lack of psychosocial support during the follow-up stages. The authors review the available literature and upon that suggest the implementation of screening tools for psychosocial distress to improve quality of follow-up care.
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