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“I Don’t Take for Granted That I Am Doing Well Today”: A Mixed Methods Study on Well-Being, Impact of Cancer, and Supportive Needs in Long-Term Childhood Cancer Survivors
Publication

“I Don’t Take for Granted That I Am Doing Well Today”: A Mixed Methods Study on Well-Being, Impact of Cancer, and Supportive Needs in Long-Term Childhood Cancer Survivors

Nowadays, most children can be cured from cancer and become survivors. This means that more survivors experience physica...

UpdatedPsychosocial CareAll
2021
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Talking to Kids About Cancer
Publication

Talking to Kids About Cancer

A compact guide on talking about cancer with children - with helpful information, tips and real-life examples from those...

UpdatedQuality of LifeAll
2023
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Transition and Transfer in Rare Chronic Diseases. Implementation of Established Concepts From Theory to Practice
Publication

Transition and Transfer in Rare Chronic Diseases. Implementation of Established Concepts From Theory to Practice

The article provides a new suggested care pathway within the transition from paediatric to adult medicine.

UpdatedQuality of LifeAll
2023
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The Long Shadow of Childhood Cancer: A Qualitative Study on Insurance Hardship Among Survivors of Childhood Cancer. BMC Health Services Research, 2021. 21(1): P. 503.
Publication

The Long Shadow of Childhood Cancer: A Qualitative Study on Insurance Hardship Among Survivors of Childhood Cancer. BMC Health Services Research, 2021. 21(1): P. 503.

This study explored qualitatively, in a sample of childhood cancer survivors (CCS),(i) the experiences and needs of CCS...

UpdatedQuality of LifeAll
2021
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Mental Health-Care Utilization in Survivors of Childhood Cancer and Siblings: The Swiss Childhood Cancer Survivor Study. Support Care Cancer, 2014. 22(2): P. 339-349.
Publication

Mental Health-Care Utilization in Survivors of Childhood Cancer and Siblings: The Swiss Childhood Cancer Survivor Study. Support Care Cancer, 2014. 22(2): P. 339-349.

The authors aimed to (1) describe the utilization of mental health-care in survivors and siblings, the association with...

UpdatedMental HealthAll
2015
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Cancer’s Positive Flip Side: Posttraumatic Growth After Childhood Cancer Support Care Cancer, 2016. 24(1): P. 195-203.
Publication

Cancer’s Positive Flip Side: Posttraumatic Growth After Childhood Cancer Support Care Cancer, 2016. 24(1): P. 195-203.

We aimed to (1) describe PTG in Swiss childhood cancer survivors including the most and the least common PTG phenomena o...

UpdatedPsychosocial CareAll
2016
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Psychological Symptoms, Social Outcomes, Socioeconomic Attainment, and Health Behaviors Among Survivors of Childhood Cancer: Current State of the Literature. J Clin Oncol, 2018. 36(21): p. 2190-2197.
Publication

Psychological Symptoms, Social Outcomes, Socioeconomic Attainment, and Health Behaviors Among Survivors of Childhood Cancer: Current State of the Literature. J Clin Oncol, 2018. 36(21): p. 2190-2197.

This review of the literature focuses on mental health symptoms, achievement of social milestones, socioeconomic attainm...

UpdatedPsychosocial CareAll
2018
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Financial Toxicity in Adolescent and Young Adult Cancer Survivors: Proposed Directions for Future Research
Article

Financial Toxicity in Adolescent and Young Adult Cancer Survivors: Proposed Directions for Future Research

An analysis of the financial burdens of survivors, of the factors that contribute to their development and of the needed...

UpdatedEducationAll
2021
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Health-Related Quality of Life Issues in Adolescents and Young Adults with Cancer: Discrepancies with the Perceptions of Health Care Professionals
Article

Health-Related Quality of Life Issues in Adolescents and Young Adults with Cancer: Discrepancies with the Perceptions of Health Care Professionals

A study that highlights the importance of direct involvement of young affected patients in the planning and improvement...

UpdatedQuality of LifeAll
2021
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IGHG Ototoxicity Guideline
Guidelines

IGHG Ototoxicity Guideline

Recommendations for surveillance for ototoxicity (hearing loss, tinnitus, or both) in survivors who were treated with pl...

UpdatedQuality of LifeAll
2019
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Evaluating the Impact of Social and Built Environments on Health-Related Quality of Life Among Cancer Survivors
Article

Evaluating the Impact of Social and Built Environments on Health-Related Quality of Life Among Cancer Survivors

How the neighborhood characteristics affects cancer survivors' quality of life?

UpdatedQuality of LifeMixed Type
2022
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Childhood Cancer Survivors Experience Sensory Changes After Treatments
Publication

Childhood Cancer Survivors Experience Sensory Changes After Treatments

Changes in sense of touch is a long-term side effect of of chilhood cancer survivors

UpdatedLate Effects of TreamentMixed Type
2022
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