STRONG-AYA is a new, interdisciplinary, multi-stakeholder European network aiming to improve healthcare services, research and outcomes for Adolescents and Young Adults (AYA) with cancer aged 15-39 years at cancer diagnosis.
AYAs with cancer form a unique group; they face age-specific issues (e.g. infertility, unemployment, financial problems) and decreased quality of life due to cancer and its treatment. Unlike dedicated healthcare and trials for pediatric cancer patients, AYA-specific healthcare services are scarce and vary across Europe.
The specific objectives of the project include: (1) Development of a Core Outcome Set (COS) for AYAs with cancer; 2) Implementation of the COS in five national healthcare systems (France, Italy, Netherlands, United Kingdom, Poland) and establishment of national infrastructures for outcome data management and clinical decision-making and a pan-European ecosystem; 3) Dissemination of outcomes and facilitation of interactions between national and pan-European stakeholders to develop data-driven analysis tools to process and present relevant outcomes, establish feedback loops for AYA cancer patients and the healthcare systems, and improve the reporting and assessment of outputs towards policy-makers.
STRONG-AYA is funded by the European Union (Grant Agreement 101057482) and by Innovate UK (10038931, 10039273, 10041045, 10044189).
Dit artikel biedt uitsluitend informatieve ondersteuning en is geen vervanging voor professioneel medisch advies, diagnose of behandeling. Raadpleeg altijd uw zorgverlener bij medische beslissingen.
Deze inhoud is gemaakt tijdens het project EU-CAYAS-NET, medegefinancierd in het kader van het EU4Health-programma in 2022-2025 (subsidieovereenkomst nr. 101056918).
