Cesty zapojení pacientů: Zapojení mladých pacientů s rakovinou do výzkumu

Young Cancer survivors and caregivers are those who experience how to live with the disease and for that reason, they can disclose specific needs that a researcher might not be aware of. By targeting the unmet needs, patients and caregivers can drive research and enhance the outcomes. In this webinar held by Infinity Communications, interviews are held with a young adult cancer survivor, Maria Lawal, and a researcher, Rachel Taylor, – who have been working together for 12 years.

They shared how they met over a youth-focused branding cancer study (BRIGHTLIGHT Young advisory panel), embodying inspirational patient engagement of teenagers and young adult cancer patients. Today, Maria is part of the team, and co-applicant in research projects. Maria’s testimony showcases how adolescents and young adult cancer patients and survivors can become true partners, playing a fundamental role by being involved in research and making a meaningful difference in shaping the healthcare system.

As Maria advocates: “Involving patients from the beginning opens a room for a positive change (…) We need each other to work as a community.”