Thanks to better cancer treatments, more than 80% of children and adolescents in Europe who get cancer will now survive more than 5 years. There are currently over 300,000 survivors of childhood and adolescent cancer across Europe, and this number is growing. But cancer treatments are harsh and there are long-term effects that mean that survivors require closer health monitoring than the average population. There are clinical guidelines that tell healthcare professionals what care is needed, but it’s challenging to put them into practice in routine survivorship care.
PanCareFollowUp is an EU-funded project (Grant Agreement 824982) looking at how to best deliver survivorship care to survivors of childhood and adolescent cancer in Europe. The project will:
• Develop the PanCareFollowUp Care intervention, based on state-of-the-art knowledge about what regular screening individual survivors need and how it can be best delivered using person-centred care approaches,
• Test the PanCareFollowUp Care intervention in four countries (Belgium, Czech Republic, Italy and Sweden) in partnership with 800 survivors, measuring effectiveness, value and cost-effectiveness,
• Test the feasibility of using the European Survivorship Passport in delivering the PanCareFollowUp Care intervention in Italy and explore the development of an App,
• Develop the PanCareFollowUp Lifestyle intervention, a person-centred eHealth lifestyle intervention tailored to meet the individual needs of survivors,
• Test the PanCareFollowUp Lifestyle intervention in the Netherlands in partnership with 60 survivors, looking at effectiveness, acceptability and feasibility,
• Develop materials to support replication of the PanCareFollowUp Care and Lifestyle interventions in new countries across Europe in the future, and
• Widely disseminate and communicate the project’s results to survivors and their families, researcher, healthcare professionals, healthcare decision makers and policy makers.
